I called my rheumy today about trying Benlysta, I had been hearing great things from fellow lupies. I have no clue why I got my hopes up thinking maybe this would be my savior. I thought maybe now I will get my life back, feel like me again. I was so positive and it was going to work for me. My call back was a no, it is not appropriate for me due to my disease manifestations. Meaning, I am not sick enough via blood work or this is what I take as the meaning. I have been on prednisone going on two years and I have gone up and down, usually on purpose and a couple of times by mistake. Lupus brain fog. I am taking this badly I am being such a drama queen. Why am I so upset over a drug I never tried, and I don't even know if it would even work for me?? For some reason (due to my prednisone use) my blood work does not correlate to how I feel. My blood work looks good because I upped my prednisone to 20mg before my blood test by mistake, and I felt great for a week or so. Sometime I think I have more than just lupus, there has to be more wrong with me. I'll go into my rheumy and tell him, I have these symptoms I have more than lupus. Well, these are all lupus symptoms, I know. I am just a pain in the butt to my doctor, I know I am. I don't listen so well but I want magical treatment with no bad side effects and I want to pretend that I am not sick someone else is. Who me no, I am not weak, I am strong. Whatever, I am being a drama queen a lot of people cannot take benlysta. I guess I should be thankful I am not sicker than I already am. I am just confused!!